EpLink and the Ontario Brain Institute (OBI) are looking to gather the input of Canadians living with or caring for people with epilepsy or seizures to set the priorities for epilepsy research in Canada.

If you have epilepsy or experience seizures, or if you care for or work with someone who does, we want your help in setting the priorities for epilepsy research by picking your top research priorities in a short survey.

Your rankings in this survey will help direct researchers and research funding organizations to answer the questions that are most important to people living with epilepsy and/or seizures when planning future research projects.

This priority setting process follows the methods of the James Lind Alliance (UK) and is being funded by OBI. It is led by a Steering Committee that includes patient advocates, patient advocacy group representatives, clinicians, and healthcare professionals working with persons who have epilepsy and/or seizures.

It would be greatly appreciated if you could support this initiative. Here are some ways you can help:

  1. Take part by completing the survey: http://www.braininstitute.ca/epilepsysurvey
  2. Share the survey with your team/colleagues and other health care providers.
  3. Share the survey with support groups or professional groups you might have connections with. We are looking to receive at least 500 responses, so all sharing is appreciated.
  4. Raise awareness via newsletters/webpages/blogs/social media – please follow the Twitter accounts @EpLinkON, @OntarioBrain, @LindAlliance

The survey is open until March 7, 2021. No one knows epilepsy better than the people who live and work with it every day. Let us know what matters to you!  

Leave a Reply

Your email address will not be published. Required fields are marked *

Post comment