Bridging the Gap Between the Epilepsy Clinic and Community Supports

When first diagnosed, people with epilepsy and their families often have a lot of information to sort through and process, and may not know where to go for support. Ms. Mary Secco has created the Clinic To Community© (C2C©) program that connects people with newly diagnosed epilepsy directly to community support programs and resources.

The C2C© program focuses on helping clients to better understand and manage epilepsy. When entering the C2C© program, a person with epilepsy and their family will meet with a trained epilepsy educator who will help to explain the epilepsy diagnosis, the different seizure types, treatments options and first aid. Clients are also given a seizure log and access to resources on many different epilepsy-related topics (e.g. legal rights of employees and employers, birth control and pregnancy, co-existing disorders and quality of life, sudden unexpected death in epilepsy, driving and government programs/grants).

To examine the impact of this program, Ms. Secco will look at several different outcomes, including caregiver's knowledge of proper epilepsy care and the focus on family within the epilepsy care system in Ontario. Overall, the study will measure the benefits of linking people directly to community supports, with the hopes of bringing the C2C© approach to more care settings in Southwestern Ontario.

Researcher(s): ,
Institution(s): ,
Status: Recruiting

If you are interested in being a part of this study, please contact us.

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